On a hot day in July of 2015, we welcomed our beautiful baby girl, Elle, to our family. As we navigated our way through the challenges of being first-time [...]

Our daughter and sister Daviana was born on November 3rd, 1998. It was a terrifying time when she was born. Daviana was not breathing, and they thought she had [...]

When Valarie Malyneaux was diagnosed with vitiligo 20 years ago, her doctor told her there was no cure for this chronic immune disorder – and it turned her world “upside [...]

My husband, Mike, and I were just 29 years old when he was diagnosed with behavioral variant Frontotemporal Dementia (FTD), a progressive neurological disorder with no known treatment or [...]

I was diagnosed with Limb-Girdle Muscular Dystrophy (MD) at the age of 24. Born, raised, and educated in Cambridge, MA, I received a bachelor’s degree in Fashion Design and [...]

“Your girls are a mystery.” Not the words a parent wants to hear from a neurologist.  Our girls, now ages 8 and 10, have never developed “typically.”  As infants [...]

In 2008, my son Michael was diagnosed with a urea cycle disorder called Argininosuccinic Aciduria (ASA) at just three days old. ASA is rare genetic disorder characterized by deficiency [...]

When I was little, my parents told me I was always hungry, and I would choke and vomit when I ate. When my parents told my doctor, the doctor told them that [...]

After suffering a heart attack at the age of 46, which was brought on primarily from years of battling high blood pressure, my new doctor revealed that the cysts [...]

I am a 65-year-old retired executive in the high-tech, telephone and consumer electronic industries. I was diagnosed with severe heart failure at the age of 38 and forced to [...]